Last weekend Madeline's friends and family came together to show their support and raise funds to help pay for her double lung transplant. With more than 250 people packing into the Canonchet Clubhouse in Narragansett, the event was a great success and a testament to all the wonderful people pulling for Madeline. Thank you to everyone who donated auction items, raffle items, food, drink and the time and energy it took to make it such a great afternoon!
Last week was a big week for Mad For Life. Following Sunday's kickoff event, Madeline's son Mike was on the Rhode Show on WPRI TV (channel 12) Monday morning to help raise awareness for Scleroderma, organ donation and Madeline's fight for new lungs. Thanks to all the great people at WPRI for having us on the show!
Thursday, September 29th marked 75 days since Madeline was first activated on the lung transplant list. She and Jim have now been in Pittsburgh for 11 weeks, and other than Madeline’s twice-weekly pulmonary therapy sessions and occasional meals out, life in Pittsburgh is has been pretty routine. Just a lot of waiting.
However, day 75 on the transplant list marked another important day on the calendar - Madeline’s birthday. Madeline’s “brother like no other”, Walter, and her “SIL” Janet flew out to Pittsburgh to celebrate.
The day started with pulmonary therapy at UPMC, just like the previous 11 Thursdays. But this time Jim and Mad were accompanied by Walter and Janet. (Click on the pictures to see them in more detail.)
Much of the rest of the day was spent showing the Boyles around Pittsburgh.
Later that night Jim and Mad celebrated her birthday along with their extended Pittsburgh family. Together, Madeline and Jim “blew out” the unlit birthday candles (oxygen & flames don’t mix!). Madeline also received a Terrible Towel in homage to her new temporary home. But don’t worry! Although she may have a newfound appreciation for Pittsburgh and the Steelers, she’s still a New Englander and a Patriots fan through and through!
As often as possible, we'll try to update this page to let you know how Madeline is doing and where she is in her fight for new lungs. Visit often!