Today was a quiet day. The surgical team performed two other lung transplants today, so the procedure to insert Madeline's feeding tube was postponed once again until tomorrow. The respiratory team did another breathing trial, but after Madeline's big day yesterday, they opted to keep her on the vent to give her new lungs a bit of a rest today.
For the most part, Madeline and Jim spent the day reading, with Madeline catching up on some of the social media she has missed over the last week. Jim reports that Madeline's motor skills continue to improve, which has been very helpful in communicating. Since he has difficulty reading her lips, Madeline is mostly communicating with him in writing. Even on days like today where there is not a lot to report, it is amazing to think about the progress Madeline has made in such a short time.
5 Comments
Joan and Pat
2/1/2017 08:49:51 am
Everybody needs a day of rest. Glad to hear your motor skills keep improving, Madeline, so you can communicate better with your Darling and stay in touch with the rest of your Family and Friends! You have made such remarkable progress in such a short span of time! You never cease to amaze us! Keep going on your road to recovery and we'll keep sending all POSITIVE thoughts and prayers your way.
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JJ and Mary
2/1/2017 10:32:02 am
Agree with Joan..... Everyone needs a day of rest!!! My favorite kind of day!
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Paula p
2/1/2017 11:03:25 am
She is one wonderful wonderwomen! prayers continue.
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Jane Iannetta
2/1/2017 01:22:33 pm
Thanks for the updates! Steady continued progress! You are an inspiration Madeline!!
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Keeping CurrentAs often as possible, we'll try to update this page to let you know how Madeline is doing and where she is in her fight for new lungs. Visit often! Archives
August 2018
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