Today was a quiet day. The surgical team performed two other lung transplants today, so the procedure to insert Madeline's feeding tube was postponed once again until tomorrow. The respiratory team did another breathing trial, but after Madeline's big day yesterday, they opted to keep her on the vent to give her new lungs a bit of a rest today.
For the most part, Madeline and Jim spent the day reading, with Madeline catching up on some of the social media she has missed over the last week. Jim reports that Madeline's motor skills continue to improve, which has been very helpful in communicating. Since he has difficulty reading her lips, Madeline is mostly communicating with him in writing.
Even on days like today where there is not a lot to report, it is amazing to think about the progress Madeline has made in such a short time.
As often as possible, we'll try to update this page to let you know how Madeline is doing and where she is in her fight for new lungs. Visit often!