We know that each day of this journey is going to have its ups and downs. Today was no different.
Late last night, Madeline was moved from her bed in one wing of the CTICU to a more private room on the other CTICU wing. This wing is for patients who are slightly less critical, which is a good sign. Unfortunately, her new room didn’t help her get much rest overnight, so she was a bit sleepy when Jim, Colleen and Mike arrived. She spent much of the morning sitting up in her chair (sitting in the chair allows her lungs to expand more than lying in the bed) with the lights off and easy listening music on while getting some short bouts of sleep. In addition to being tired, Madeline was feeling nauseated on and off throughout the day. She also desperately wanted to have some water to drink, but had to settle for a few small swabs of her mouth. On the positive side, she was better able to communicate without the breathing tube in her mouth. Now her family just needs to get better at lip reading and charades! Some messages were easier to understand than others. Mike headed home to RI midday with strict orders to “Give my boys great big hugs!” Another positive is that Madeline is demonstrating more and more spontaneous movements. Throughout the day she would raise her arms towards her head and stretch her fingers just because she could. She was also moving her legs -- at one point crossing them while lying in bed. The best news of the day, however, came from a breathing trial. This breathing trial was the most successful one yet. Madeline was able to breathe on her own for 10 minutes without the vent! Towards the end of the ten minutes, Madeline was getting tired, so they put her back on the vent. There had been discussion of trying to get Madeline to take some steps today, but that didn’t come to fruition. Maybe that will be a highlight for tomorrow.
12 Comments
Donna kavanagh
1/28/2017 09:30:35 pm
👍🏻👍🏻👍🏻👍🏻👍🏻
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Pat and Joan
1/28/2017 10:15:34 pm
So many positives- we are so impressed with your progress, Madeline! Hopefully, you'll sleep tight tonight and tomorrow you will show them your core strength. You've got this, Girlfriend! We're with you every step of this journey cheering you on- I feel like I'm back at Bay View in my cheerleading uniform- if only I was still in my teens rather than 60's! Mike, give big hugs to Meg and your boys from "Miss" Joan and "Mr." Pat, too!
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Andy
1/28/2017 10:22:39 pm
Madeline
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Warren
1/28/2017 10:49:44 pm
Keep at it Mad. We're all pulling for you.
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Deborah Rowley
1/29/2017 06:49:41 am
Dear friend, you continue to inspire so many of us. Every day before I get up I say my pRayers and you are in every one. I just know you'll make it through and be with us here very soon. Rest up, there's a lot to look forward to.
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Michelle McQueeney
1/29/2017 09:27:17 am
More wonderful news and progress! What a fighter you are! I look forward to reading the updates every morning. Love you!
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Patti Ryan
1/29/2017 10:11:32 am
Great News!!! Great job "Peaches" Every day is full of Blessings!! Love and Hugs to all Patti Ryan
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Candy and Bill
1/29/2017 10:23:43 am
So glad to hear you are making such good progress!!!! We look forward to your blogs every day! Just face timed with Dan. He and Pete and heather say hi and that they are taking good care of la Quinta! Prayers and hugs!
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Jeanne LaBelle
1/29/2017 11:53:13 am
Madeline, I'm delighted that each new day brings progress for you.
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Linda & Richie Reich
1/29/2017 05:06:05 pm
We are saving your seats at the Willows! Get well soon!
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Diane McG
1/29/2017 06:06:45 pm
Hi Madeline! Your spirit is remarkable! You're "doing your job" well. The results are showing. If you were a football player, Bill Bellichick would draft you! XOXO to you and Jim. Thanks again to Mike and Colleen for this great Blog.
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Moira Collier
1/30/2017 12:55:12 pm
A huge congrats on your time off the vent... those trials are extremely hard and exhausting (both physically and mentally)! You'll get there though. Keep believing in yourself! You are such a fighter and an inspiration. My family will continue to keep you and your family in our thoughts and prayers.
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Keeping CurrentAs often as possible, we'll try to update this page to let you know how Madeline is doing and where she is in her fight for new lungs. Visit often! Archives
August 2018
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