Madeline has made this whole experience look easy - a piece of cake - but we all know that none of it was as easy as she made it appear. It’s fitting that Mad’s first food in 67 days was a piece of cake.
Monday morning the pig tail tube which had been draining the pneumothorax was removed. Later in the day, Madeline underwent a barium swallow test which she passed with flying colors.
As Jim and Mad were waiting for the discharge late Tuesday morning, Madeline's feeding tube became clogged. So before being discharged, she had to have the feeding tube replaced once again. Madeline has officially graduated to a “soft diet” but her meds are still being administered through the tube.
Shortly after arriving at their home away from home, Madeline thoroughly enjoyed a piece of cake and some pudding.
Today was the first day in more than three and a half years that Madeline was able to walk around the house without any tubes -- no oxygen, no feeding bags. Her day was blessedly normal -- pastry and coffee for breakfast, mac and cheese for lunch and beef stew for dinner. She was even excited to report that she switched the laundry from the washer to the dryer -- something she hasn't done since arriving in Pittsburgh in July.
She topped the day off with a long-awaited, celebratory glass of Chardonnay.
As often as possible, we'll try to update this page to let you know how Madeline is doing and where she is in her fight for new lungs. Visit often!