Yesterday morning Madeline went into surgery to get a feeding tube inserted directly through her abdomen to her stomach. With this surgery, Mad is now free of tubes on her face and she is much more comfortable. Once the anesthesia wore off, Madeline spent the day sitting up in her chair while still on the vent.
Madeline experienced some pain today in her side due to her new stomach tube, so she had another day without walking. But as Jim reports, she was a “happy girl” to have her hair washed today! Madeline’s ventilator was turned off at 6:30 this morning. When the vent is off, she receives a small amount of oxygen through her trach. If Madeline is able to stay off of the ventilator through the night, she may get to graduate from the CTICU before the end of the day!
Tomorrow, Madeline’s medical team will perform a lung biopsy through her trach to check for any signs of rejection. We’re hoping and praying to have good news to share!
As often as possible, we'll try to update this page to let you know how Madeline is doing and where she is in her fight for new lungs. Visit often!