Yesterday was a milestone day in Madeline’s recovery. She has been completely off the ventilator since Sunday, so the vent was officially taken out of her room in the morning. Another piece of equipment is gone, as the final drainage tube was removed from her chest. Madeline’s trach tube was also replaced with a smaller trach tube. This smaller tube is now attached to a speaking valve that allows her to talk! While her voice is still a little weak, she sounds very much like her old self. Madeline also received the wonderful news that her biopsy report came back favorable with no signs of rejection!
While those advancements alone are amazing, there are more exciting next steps on the horizon. On Monday, Madeline will be moved from her current room in the main building of the UPMC campus to a rehabilitation unit in another connected building. When Madeline moves, she will be leaving the hospital gowns behind and trading them in for her own comfortable clothes. She expects to be in the rehab unit for about the next two weeks. During that time, Madeline will be spending 4 to 5 hours per day out of her room for rehab. She hopes to have the feeding tube and the trach tube removed within the next week.
As often as possible, we'll try to update this page to let you know how Madeline is doing and where she is in her fight for new lungs. Visit often!