Each day Madeline looks more and more like herself. She had a good morning, was very alert when Jim, Colleen, and Mike arrived, and smiled through her daily reading of all of your well-wishes. Her biggest issue today seemed to be discomfort caused by the breathing tube that’s been in place since Sunday. Her mouth was very dry, and while this is the most alert she’s been all week, she had difficulty communicating with the tube still in her mouth.
They tried more breathing trials this morning, which is where they turn off the ventilator to see if Madeline can breathe on her own. Madeline wasn’t quite ready to take breaths on her own yet, so she’ll probably be on the ventilator for at least a few more days.
Since she’ll be on the ventilator for a little while longer, they decided to perform a tracheostomy this afternoon. Instead of having a tube through her mouth, it now goes directly through her throat, which is at least a little more comfortable for her. The procedure only took about a half hour and was performed right in her room, but she was “out of it” for a little while afterwards. However, when she awoke, she looked even more like the Madeline we all know and love. Despite the challenging week and long road ahead, she had nothing but big smiles. She’s taking baby steps, but making progress every day.
As often as possible, we'll try to update this page to let you know how Madeline is doing and where she is in her fight for new lungs. Visit often!