Madeline was hoping to trade her nasal feeding tube for a stomach feeding tube today. Not because of the surgery it would entail, but because she was really looking forward to getting the tube out of her nose. Unfortunately, the surgery was postponed until tomorrow and she gained an additional tube in her other nostril until that surgery takes place. Her stomach has been distended for the past few days and her medical team has been draining her stomach to remedy that situation.
However, there were many positive developments today. Madeline’s motor skills improved dramatically overnight. Her writing on the Magna Doodle is now very legible and she was able to independently use some technology. In fact, she did not need to have your comments read to her because she had logged into the blog and Facebook and had read them herself! In addition, during her morning physical therapy session, Madeline walked from her chair to the door (about a 5 foot distance) and back twice, which is incredible considering just a few days ago she was still bedridden and almost completely sedated. Later, when she left the room for a CT scan, she walked from her chair out to the stretcher in the hallway. But the best news of all is that they tried another breathing trial this morning. Madeline’s new lungs kept her off the ventilator for about eight and a half hours today! This is an amazing improvement over her prior trials which lasted no longer than ten minutes.
Hopefully tomorrow she will be rid of both nasal tubes and will be MUCH more comfortable!
1/30/2017 08:39:13 pm
Eight hours Maddy. That's wonderful. I understand you still have that beautiful smile. I hope to see you in Fl. Sometime soon. Keep moving forward. God bless
Jennifer Costanzo Druzisky
1/31/2017 09:33:35 am
Tom and Tender
1/30/2017 08:42:04 pm
Certainly a very encouraging day for Madeline and all the family ! Prayers continue every day....... Keep up the good work, Mad!!
Cumberland (and Narragansett) Reillys
1/30/2017 08:42:10 pm
Great stuff !! Way to go, Mad !!!
1/30/2017 09:02:32 pm
This is such great news. Way to go Madeline!! Your progress has been amazing and inspiring. Keep up the hard work. Wishing you all the best from the west coast. Great job Reilly's!!
Karen & Bob
1/30/2017 09:06:42 pm
Madeline you are amazing! With every post we are reminded of your strength and courage. You are an inspiration to us all. Sending you our love, thoughts and prayers.
Joan and Pat
1/30/2017 09:10:43 pm
👍🏻👏🏻 Fabulous news! We are so thrilled for you, your Family and for all of your Friends, Madeline! Keep up your progress. We'll keep sending POSITIVE thoughts and prayers.
Gail & Ed
1/30/2017 09:14:08 pm
Madeline, Fabulous news! We could not be more excited. Go slowly & keep up the good work. Our prayers continue. Luv, Ed & Gail
1/30/2017 09:20:00 pm
8.5 hours on your new lungs?! Incredible!! I am thrilled you are making such amazing progress. ❤
1/30/2017 09:32:52 pm
Love hearing about all the progress she is making so quickly......she is an amazing, strong women! We are all praying for you Madeline, stay strong and keep smiling!
1/30/2017 09:48:14 pm
How fantastic! I'm thrilled to hear that you're making such great progress, Madeline.
1/30/2017 09:54:44 pm
Still sending Grandma Theresa Kavanagh's favorite Saint to you St Theresa, in her prayers every day! Love you! xo
Diana & Pat Murphy
1/30/2017 09:56:58 pm
Way to go Madeline!!!👍👍!!simply amazed how much you have progressed... Once those nasogastric tubes come out,you'll really feel like a "new woman"! Will keep the prayers coming...😍
1/30/2017 10:10:28 pm
Wow!! 8.5 hours on new lungs gives me goosebumps. And the walking already while dealing with the stomach stuff and nasal tubes...Madeline is such an inspiration. I am amazed. You are very much in my prayers. love, Seana (Colleen's friend and old neighbor)
Steve & Fran Floody
1/30/2017 10:19:29 pm
Congratulations on the outstanding progress grateful that Mads is moving along so strongly.
1/30/2017 10:23:11 pm
You are just moving by leaps and bounds.. keep it up but don't overdue...I am so proud of you...xoxo mary
1/31/2017 06:11:19 am
Eight and a half hours!!!! What magnificent progress you made today!! Good luck with surgery today, another step forward.
Denny and Jane
1/31/2017 07:45:13 am
Wonderful wonderful news Madeline😀😀
Molly and Dave
1/31/2017 08:18:35 am
Awesome news!!! Thinking of you all!
The Matt Colliers
1/31/2017 08:26:51 am
You're inspiring us all here in NJ! We're still praying for you daily! xoxoxoxo
1/31/2017 08:34:50 am
Fantastic news Mad. Keep up the great work.
Jane & Andy
1/31/2017 08:52:09 am
Joe and Lorraine Sparra
1/31/2017 09:30:10 am
Such a great encouraging report. Keep it up Madeline! You'll be ready to conquer Disney, yet again, with the grandkids!
The TN Reillys
1/31/2017 09:47:11 am
YAY, Aunt Mad!!! Wonderful how much progress you're making every day! Can't wait to hear what today brings. Sending our love to you!
1/31/2017 11:46:21 am
We've been praying for you, Madeline, and cannot believe all the good news! We look forward to every update and will continue to keep you in our daily prayers as your recovery continues. Warmest love and prayers from the Colliers! (Kelly, Sean, Mark, Tommy, and Jacob)
Candy and Bill
1/31/2017 12:38:09 pm
ALLEN & Rosemary
1/31/2017 05:05:26 pm
Hey Mad - we check your blog everyday ( thanks Colleen for keeping all of Rhody etc. up to date)
1/31/2017 05:24:44 pm
I stopped to see you last week. So glad to hear you are making excellent progress
1/31/2017 06:22:45 pm
Wow! Madeline you are amazing! Your strength and determination is an inspiration to us all! Keep up the great progress!
2/1/2017 08:16:11 am
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As often as possible, we'll try to update this page to let you know how Madeline is doing and where she is in her fight for new lungs. Visit often!